SHADOWS OF THE LEPERS
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Edmond entered the hospital as did his four other siblings , but he did not surrender to his fate. He fought with his pen and his limited energy to stay connected to his family and to improve living conditions for himself and other patients. Project MUSE promotes the creation and dissemination of essential humanities and social science resources through collaboration with libraries, publishers, and scholars worldwide. Forged from a partnership between a university press and a library, Project MUSE is a trusted part of the academic and scholarly community it serves.
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Additional Information. Claire Manes, Edmond's granddaughter, lived much of her life gripped by the silence surrounding her grandfather. When his letters were discovered, she became inspired to tell his story through her scholarship and his writing. Out of the Shadow of Leprosy: The Carville Letters and Stories of the Landry Family presents her grandfather's letters and her own studies of narrative and Carville during much of the twentieth century. The book becomes a testament to Edmond's determination to maintain autonomy and dignity in the land of the living dead.
Island of shadows : D'Arcy Island leper colony, 1891-1924
Letters and stories of the other four siblings further enhance the picture of life in Carville from to Table of Contents. Cover pp. Contents pp. Foreword pp.
Acknowledgments pp. Introduction: A Family and a Disease pp. Our second focus is expanding public awareness.
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We believe it is important to inform the public that leprosy is curable and discrimination is unjust, and this is where the media plays a key role. Leprosy, a taboo subject in many regions, has received little coverage in the media. In other words, it has remained in the shadows. We therefore encourage those who have been cured of leprosy to talk about their personal experiences and the discrimination and misunderstanding that they have suffered. By sharing their experience, more and more people learn about leprosy issues.
In this way, I take leprosy out of the shadows.
Working together for a world free from leprosy
Our third focus is community involvement. In leprosy, early diagnosis and prompt treatment are crucial. Many patients still lack basic knowledge of the disease or fear being discriminated. This results in delayed diagnosis and treatment, which may lead to serious complications.
Moreover, in many cases, there are no doctors specializing in leprosy in the region. Conducting activities that involve the entire community is an effective way to ensure that potential patients receive prompt treatment. For example, in India, people who have actually experienced leprosy are instrumental in forming self-help groups.
Read the Sermon
If there are people in the area showing symptoms of leprosy, these self-help groups introduce the potential patients to an appropriate medical facility. The members of the groups are neither doctors nor medical staff, but because of their own experience, they are more aware of and attentive to early symptoms, and more capable of persuading others to seek treatment.
These sorts of community based activities have been enormously helpful in leading untreated people to seek early treatment.